PLD Support Group
PLD polycystic liver disease support group. Tell us how you are doing, anything you may have found helpful, or any difficulties you might be experiencing. PLD is inherited with kidney cysts or without. Medical treatments include: minimizing exposure to hormones, avoiding caffeine, and false estrogen. We are hopeful Octreotide Clinical trials will prove useful. Surgical options include liver resection, liver transplant, and liver artery ablation. Pain and bloating with early satiety are among the most common reported symptoms. For unique individuals with a few large liver cysts or with many close to the surface liver cysts– deroofing may prove helpful for pain relief. Some have tried diet and lifestyle changes to help diminish symptoms and liver cyst growth. The good news is 92% of individuals with liver cysts require no treatment. If you are among the 8% with severe liver cysts this may require debulking procedure. Join us.
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Read archived messages from the closed MSN group, Linda's Polycystic Liver Disease Group.
Should you have both kidney and liver cysts try a PKD support group.
A PKDiet Polycystic Kidney Disease bridge support group that connects health care from your physician, thriving care from yourself, and lifestyle changes, creating a growing link with our mutual individual experiences. Spanning the bridge at the base are PKD scientific research articles, as well as participants and contacts from ongoing clinical trials. New treatments advances are coming around yearly. Some we can begin; others require our physician's help; some are trials testing theories of not yet released medications. Each of you are individual bridges helping to cohesively bring together your doctors, your body, your mind, your spirit and your treatments. Welcome.